Summer 2019 has been the beginning of a new chapter in life. It's been very exciting and stressful. I'm quite glad that it has begun to settle down now. I moved out of a student house and into a flat with my boyfriend, moved away from Plymouth to Bristol, and started a new job at … Continue reading A New Chapter
I am SO blessed to say that all of my treatment has been covered by the NHS. I can't even begin to imagine the trauma of not being able to afford treatment, and thinking about the fact that other patients with Ewing's Sarcoma have to crowdfund to purchase treatment makes me so sad and angry. … Continue reading How I get the most out of an NHS appointment
Cancer is the first suggestion when you google survivors guilt I was interviewed by a radio station back in 2014, and when I was asked how I felt about my cancer diagnosis, I said guilty. This was less about my diagnosis, and more about surviving. I suffer immensely with survivor's guilt. It's a very common … Continue reading Survivors guilt stopped me from seeking mental health care as a teenager, now it motivates me to get help.
This is a real quick and practical piece of advise for you guys; nail a spiel. Prepare and rehearse a short synopsis of your cancer treatment and outcome that you can reel off when someone asks about it. Why? To give a cohesive answer that does not trigger an emotional response. Just saying the word … Continue reading Write yourself a spiel!
I just wanted to put it out there that I fully acknowledge how privileged I am to have the issues I discuss on here. More children are now surviving cancer (and making it into remission) than ever, which has opened the window of opportunity to live a life like mine, and I'm eternally grateful. The … Continue reading Such wonderful problems to have
PTSD. post traumatic stress disorder. This is another diagnosis I have as a result of childhood cancer. It makes a lot of sense really, just from looking at the wording of it, as cancer treatment comes with unholy amounts of trauma and stress. A symptom / result of PTSD is having intrusive thoughts. Throughout my … Continue reading How I deal with intrusive thoughts about childhood cancer treatment
As a young adult living in childhood cancer remission, I often find myself lost in the 'in-between'. I find teen/young adult support does not suit my situation, as it is catered to a teen diagnosis (and I was 8 at point of diagnosis). I am obviously too old for child support groups, as I am … Continue reading Finding a tribe