I am SO blessed to say that all of my treatment has been covered by the NHS. I can't even begin to imagine the trauma of not being able to afford treatment, and thinking about the fact that other patients with Ewing's Sarcoma have to crowdfund to purchase treatment makes me so sad and angry. … Continue reading How I get the most out of an NHS appointment
I wrote the following piece last August for a charity social media post. Thought I'd pop it on here to show that I had a goal set to become more involved in helping other patients, and feel that I am fulfilling that goal with this blog! 🙂 It's a bit emotionally draining to write about … Continue reading A moment to realise I have become more involved in sharing my experience
One of my biggest ongoing problems during and after cancer treatment is sleep. And problems with sleep cause more problems in the day, creating an awful cycle if it doesn't get sorted. I was in this cycle for over a decade, but have recently invested a lot of time into improving my sleep and wish … Continue reading My top 5 tips for getting to sleep with cancer related anxiety
Cancer is the first suggestion when you google survivors guilt I was interviewed by a radio station back in 2014, and when I was asked how I felt about my cancer diagnosis, I said guilty. This was less about my diagnosis, and more about surviving. I suffer immensely with survivor's guilt. It's a very common … Continue reading Survivors guilt stopped me from seeking mental health care as a teenager, now it motivates me to get help.
This is a real quick and practical piece of advise for you guys; nail a spiel. Prepare and rehearse a short synopsis of your cancer treatment and outcome that you can reel off when someone asks about it. Why? To give a cohesive answer that does not trigger an emotional response. Just saying the word … Continue reading Write yourself a spiel!
I just wanted to put it out there that I fully acknowledge how privileged I am to have the issues I discuss on here. More children are now surviving cancer (and making it into remission) than ever, which has opened the window of opportunity to live a life like mine, and I'm eternally grateful. The … Continue reading Such wonderful problems to have
PTSD. post traumatic stress disorder. This is another diagnosis I have as a result of childhood cancer. It makes a lot of sense really, just from looking at the wording of it, as cancer treatment comes with unholy amounts of trauma and stress. A symptom / result of PTSD is having intrusive thoughts. Throughout my … Continue reading How I deal with intrusive thoughts about childhood cancer treatment